Kristi Karnopp's Diary & Blog

Am I caught up now? I think so. Anyway, it is late, and my day ended not too long ago now. I have been watching a different Roku Live channel most of the day before returning back to Midsomer Murders around 5 PM tonight. I had my dad and his wife over for our Christmas dinner. We did not exchange gifts this year but we had given our gifts earlier this year and last week. Dad and SBK got cheeses from Decatur dairy and cheesecakes for desert while I got macaroons from 808 Cheesecake down the street from here. Yummy for the tummy. I have eaten two macaroons now and have given SBK one of my macaroons for her to eat on the say home to Milwaukee, Wisconsin. They have given me some candy and cookies for the end of the Christmas holiday. They brought dinner to have dir our Christmas holiday meal. What was it? It was homemade Swiss steak, Grandma Myra’s sour cream mashed potatoes, my sister’s broccoli bake, and I provided the cheesecakes for my parents for our meal. I prefer macaroons. Now, we have to wait for New Years now because it is the last holiday of the year, and the beginning of 2024. Four days left of 2023. Exciting and cool that 2023 is almost here, now. Woohoo!

I am tired and ready to go to bed. Celebrating Christmas is now finally over in my household. It is time for me to say good night anc goodbye for the day is over and it is time to close the shop for the night. A new day will be here shortly. What are your plans foe tomorrow? I have dialysis from 11:45 AM to 2:30 PM and want treatment to go smoothly for Wednesday, December 27, 2023. I am now counting days to 2024 silently because I am a little excited for this year to be finally over. I may write one more entry before I go to sleep because I need to vent a bit. Anyway, on Roku Live TV channel 552, the first episode of Midsomer Murders is on right now. I love that episode!

With Christmas Day closing soon, it is time for me to close up shop for the day and rest for the evening and night. While closing shop, I am going to say it has been a pleasure having a quiet day with little interruptions in my day to worry about. I was asleep when HP arrived at 10 AM, waited for my meal to come up with the help of a neighbor MH, and having JP return for a short time after helping with serving meals down in the community room of tenants who signed up for their free Christmas meal, and has left around 2:30 PM end 2:45 PM. Now, the rest of the afternoon and evening is all mine alone. Christmas Day has ended with a nice ending of my holiday day of sorts.

Time’s up and time to turn the open sign to closed for the evening. Good night, dear friends and family. Have a great night.

As my day continues, JP finished helping with serving the tenants their Christmas dinner and came back up here to work for me until 2:30 PM, leaving to have Christmas with her mother-in-law. I am home alone for the rest of the day and night watching my favorite British program Midsomer Murders on channel 522 on the Roku Live TV channel app. Now, Christmas Day is drawing to a close now.

With it being Christmas Day, I am waiting patiently for my Christmas dinner to arrive so I can eat, relax, and get ready to rest for the rest of the day and night in my bedroom. Staying in my bed all day was chosen today because I have my parents from Milwaukee coming tomorrow for Swiss steak for our Christmas dinner to celebrate Christmas as a family. Yes, even though my parents giving a hard time about things, we celebrate the day with food, treats, and have time together for the holiday. My dad’s wife cooks yummy and tasty food for the holidays. A good cook she is! We are having Swiss steaks, Grandma Fox’s sour cream mashed potatoes, and some kind of vegetable, and this year, cheesecake from 808 Cheesecake place down the street on East Milwaukee St. the cheesecake place is on the corner of Main St and Milwaukee St here in Janesville, Wisconsin. YUM!!! Yummy for the tummy. My dinner arrived between 11:15AM and 11;30 AM.1 was hungry enough to eat the entire meal meal by noon, and finish watching my favorite British program. I am looking forward to tomorrow and resting up, so I don’t have visible pain in front of my parents. I do not hide my pain very well. Remember yesterday’s meltdown? I had pain then, too.

My day continues.

Good morning from Kristi’s household. Merry Christmas, too! Wow, Christmas is finally here. With my Christmas gifts of new furniture from Dad and his wife SBK, and four different t-shirts from my mom and stepdad I call Papa already opened or being used, I have to say I have no major plans today even though Garden Court tenants are having Christmas dinner catered from one of the churches in the city, and a caregiver and JP, my caregiver, are passing out dinners in the community room from 11 AM to 1 PM. I signed up but will have my dinner brought to me. I am spending the day in my bedroom and laying on my bed all day. I woke up at 4 AM and still feel tired and sluggish. Also, I want to be lazy. Feeling tired and sluggish is no fun. I am not much for big parties anymore anyway. I am not into parties at all anymore. I may go to an occasional party like a Tupperware party once in a while but I prefer a party doing something on-line now-a-days, though.

Final Thoughts of the Day and Evening

Settled in bed now. TV on Midsomer Murders and resting. Lookingu forward to tomorrow even though I am not going anywhere. It is time for me to say good night now. I will probably have more to write tomorrow through the day. Christmas Eve night has finally arrived. Good night, friends. “YAWN”

Home Now

Mace it home. The ride home seemed to bear even more chill in the air this afternoon. My face and hands and upper legs feel the chill of the air and I don’t want my power chair on number four speed because the cracks in the sidewalk hurt my bottom sometimes. I could feel the bumps more than usual and there are places my power chair needs to be on speed one and two in my driving routine both ways, especially while under the train tracks and crossing the bridge on Center Avenue. The bridge that is above the Rock River has two places I have driven over on speed one for my safety and unsecured mind. I don’t want my power chair to fall off the curb into Center Avenue with cars going forty to forty-five miles an hour. My power chair will be in damaged, and I would be a dead or very injured woman. There is no way in hell, excuse my word here, Jesus, is my life going to be over before 2024 gets here. Not my destiny anyway. I “wanna” live, Jesus, Amen!” “You died for me so I can live, Jesus!”

Noe that I am home, I am getting ready to have my snacks and waters by my bed, and I am heading to bed without fail. I am tired, unhappy about how Veyo has done their job in finding a ride for me, now with Christmas a few hours away, and a lunch for all the tenants from 11 to 1 PM on Christmas Day. I am having my dinner brought up by MH, my next-door neighbor I have deemed my daughter and friend. She helps DH and JP with some of load of making sure I get downstairs and watch for more my ride. What good it did for today, though, right? Yeah, right! Veyo has pissed me off for the last time.

After Dialysis 

Getting out of the clinic was a must by the time treatment ended for the day. I have been tired and moody all day and really wanted to be home with my kitty kiddos, because after a meltdown, I want to be in my own home and space if that makes sense to anyone. I have been having a lot of meltdowns these days. The holidays are not easy anymore. The busyness of the holiday season actually drives me crazy. I dislike the busyness of the holidays now. Am I sorry? No, not really. I do not like to fuss over the holidays even though I want to be a little festive with holiday garb and decorations each year. No need for a Christmas tree, though.

I weighed out at 82.3 kilograms, got in my power chair, and zoomed out of there to find JP outside in her truck, waiting for me to head home on my power chair. I will be home by 3 PM. Having to drive home because Veyo screwed up on setting up for my ride—idiots! I am sick and tired of being the victim of someone not doing their damn job right and being thorough by making sure I had a confirmed ride. This has happened before, but never on a holiday day where a ride was available on a Sunday in November — last month. Left and am driving home now with JP’s careful eye following me and waiting for me at certain stops.

As My Day Continues

I am at dialysis, safe and sound, hooked up to a machine and dialyzing for my 2 hours and 45 minutes at Chair #17 this morning and while my friend and neighbor (at dialysis) R (male) was in Chair #18 today. While watching the Disney channel on 44.1 at the clinic, I am hoping we don’t run into snags of any sort that’ll hinder the treatment, my blood pressure went low a couple of times and pulling fluid had to be stopped for the rest of the treatment in order to get my BP back above 100 on top and above 45 on the bottom. My BP has been bottoming out last week and today. It has been frustrating for me as the holidays is not over yet. The holidays aren’t over until January 2, 2024. “Wow, only six more days of 2023?” Yes, only six more days. Where did 2023 go? Ahead like it should slowly at times and fast at other times—maybe?? No.

I will be done dialyzing around 2:30 PM and out the door shortly after getting weighed out. We weigh in and out each treatment session. Ahhh, a two-day break is coming. Woohoo! I am looking forward to my two days off from dialysis and after the first of the year, my chaotic schedule can finally get back to normal whatever normal is to each and everyone in this huge world. What is normal for you?

Once I get out of here at 2:30 PM or thereafter, I will be driving home and going right to bed for the rest of the day and night. I am tuckered out and dealing with the machine saying my BP is low and I feel fine and a little cramped but will survive this low. I always do, wait until my blood is returned with some necessary fluid. My BP will be back to normal around 120/80 or a little lower but normal.

It is a little before 2:30 PM and I am getting ready to leave for the day and holiday weekend until Wednesday now. Going to weigh out and head out to find JP who is waiting to drive home with me for safety’s sake.

Getting up and ready for the day seemed slow and mechanical this morning. My mind was unable to rest last night and that made it difficult to sleep and rest. When my mind is unable to rest, sleep is hard to find. I have to go to dialysis this morning and my medical ride is picking me up at 11:05 AM.

I get downstairs to wait for my ride at 10:30 AM, I’m in the lobby watching for my ride for a half an hour, and no ride shows up. We wait a little longer, and yet no medical ride shows up. By 11:30 AM, having a meltdown in the lobby, JP and I decide to head upstairs. We get to my apartment door, and she said I should just drive to the clinic with my power chair and she will drive to watch for my safety in places that concern her in foggy weather on Center Avenue, I turn around and we head back to the elevator and head to the clinic by power chair and her truck. Yes, I drive to and from the clinic in my power chair often. Actually, I drive home from the clinic on nice days now. Today, since my ride to the clinic did not come, I drove to and from the clinic today in the cold, winter of the day. We have no snow yet. We have had some rain, fog, and chilly nights and days lately so far this winter season. Winter has just started here in Wisconsin three days ago anyway. Want to know what happed?

Veyo Screwed Up Again!

Well, Veyo screwed up again on finding a ride to get me to the clinic this morning. KG (female) the social worker called Veyo to let them know about the need for a ride for some of the patients who use medical rides. Well, Veyo must have not worked hard enough to find a company willing to get me to and from the clinic when KG talked to a scheduler. Oops, they screwed up big time. They sent the information to You Buy We Fly and YBWF had rejected the order, and yet someone at Veyo must have thought YBWF confirmed and were willing to pick me up. Nope, YBWF does not give rides on Sundays and holidays. Veyo screwed up big time, not YBWF, and Jackie and my Dad are going to be doing some bitching (excuse my language, Jesus) this week to Veyo and talk to someone about the dang blunder. Here I am getting upset and having a damn meltdown in the lobby of Garden Court. Uugghh! What a morning.

Driving My Power Chair to Dialysis 

I have been fortunate enough this winter so far when it comes to driving to and from appointments if I have to, and today, I had to drive myself in my power chair to dialysis today.veyo screwed up setting up my medical ride for this morning and afternoon. It angered JP and my dad. Now JP wants to get a hold of certain people to complain about what happened this morning. She is fed up with Veyo and their screwing up my rides. It’s frustrating me that I had a meltdown in the Garden Court lobby, and I could care less if other neighbors heard me. I was, excuse my description, pissed off and very frustrating. Why did Veyo confirm a ride with YouBuy We Fly when the company is not open on Sundays and on holiday days! The idiot who set up my ride did a crappy job getting me a medical ride properly set up. Driving to the clinic was bone chilling, and riding home afterwards was even more bone chilling because it was foggy and wet. For the first time in a long time, we are not expecting a lot of snowy weather. Sad, right? Yes, no kidding. You get it! JP wants to handle this situation now, and I am going to let JP handle the situation Veyo has once again made—idiot company.

You Buy We Fly called my phone and JP talked to the owner over the phone. What happened today was not YBWF’s problem. JP talked to D (male) and he said that Veyo never called to YBWF to confirm, and that they are never open on Sundays and work the holiday. Yes, Veyo screwed up big time.

Anyway, I drove to dialysis as fast as I could because the chill of the wind and fog and earlier rain was blowing in my face and making my hands cold. I covered them with the arm of my favorite kitty jacket I have had for years thanks to a friend who used to live at Burbank Plaza Apartments. I get to dialysis and on rye scale weighing at 84.8 kilograms and hooked up to the machine without an incident or concern with either the dialysis machine or my lately finicky catheter today. Many patients did not come to dialysis. Sad, when I made an effort despite the meltdown, I had a half an hour later before making the right decision to drive myself to the clinic.