Now, since DD moved back to its original/former glory days during its 25th birthday celebration, I wonder who is still here or are you leaving to back to DD where SB brought DD back to its former glory. Are you still here ?
Does anyone remember Dear Diary that was created 25 years ago with Steve Brown and his friend at the time. I was looking for a place, a 📔 or 📓 to write my feelings and happenings of the day that did not cost anything, I found DD in 2001 while I was a student in college. Well, Steve has brought back Dear Diary after 25 years and rekindled DD back to its former glory of those years gone. Yes, DD’s birthday was 25 years ago. I have an account there, In fact, I have My Life in Words, Woohoo Dear Diary is Back, Magic & Millie Kitties, and more.
Depending on the Dear Diary creator, Steve Brown, I will be at DD at deardiary.net. Steve has recreated DD to its former glory last week, and it is functional at this time. As long as ksmiley.deardiary.net is available, I will record my thoughts here. Until then, sit back and wait until I write again here. You can find me at deardiary.net from this day forward as well.
Dialysis Update
Do not mind me. I am still frustrated with coming and going to dialysis yet. Although I get there early today, I got out early, but didn’t have to wait for my ride past 2:52 PM. I did get home by 3 PM today. Getting to dialysis on time for the past month has been a nightmare. MTM and YBWF is not communicating well between one another. So I do not know who to blame. Something is not working right. Today I got in and out early for a treat. I have been looking forward to the weekend coming. Dialysis went through the cycle very well in two hours and forty-five minutes. I was glad to get out by 2:30 PM. Dialysis is now over until Monday morning around 11:45 AM.
Medical Rides
I will be very honest with you. If YBWF continues to be playing with my hours with MTM, I will be calling dialysis to tell them that I will not be coming in because my ride is still not here. I have gotten to the point where I am done playing certain mind games. It is absolutely ridiculous to get my rides settled in the right way. I have SHC tears in frustration with YBWF and MTM. Yet, taking dialysis seriously during the week is indeed crucial. I will not continue playing nor stop complaining at MTM until they stop messing up my appointment times. People are beginning to understand that you DO NOT put me in a corner without a fight ensuing because there will be a fight. I am sick and tired of my rides being messed up and being told I am lying or just like to complain. I am doing my best at making things right is all. Jackie has proof that I am not a liar when it comes to observing what is wrong with anything. No one has the right to scare the crap out of me without having some words. I am not a lady when it comes to my temper or meltdowns these days. It will turn into fuck this, fuck that, or fuck you attitude, and the bad side of me is not at all afraid to speak my mind at times. My cat Millie is timid and Magic is afraid of men unless it is his daddy, my boyfriend Ken and Grandma Tanya. I am not exactly timid like Millie.
With that all said now, I have peace now. I am now home ready to sit back and read a bit before going to sleep for the night, and wait for my cares for Saturday morning and evening with Deb. I think I am now, once again, caught up with my journaling now. I am always running behind in my journaling these days most of the time and I hate falling behind.
Another day has started and today is dialysis day. We still have the Cathflo shortage but have some other brand of Cathflo that needs to be used wisely. Anyway, it’s Wednesday, and I am looking forward to Friday being a non-busy weekend for me. I will be seeing my boyfriend and his mom this Sabbath after church. Woohoo!!
Dialysis Update
Dialysis went well today. I was able to get a cathflo today, so Friday’a treatment should be a good one. I do have to admit that I dread going to dialysis right now because of the cathflo shortage being a nationwide problem right now. My thoughts are thinking of it being a political statement or another country is involved. It scares me a bit. Not sure what to think or trust! We rely on a lot of things from other countries as well these days and I haven’t trusted those who came to the United States to affect us with the Covid virus, and we had been told to stay home and not go anywhere because of an outbreak of Covid in 2020. I ended up with Covid in July on the 18th in 2022, and the nightmare began being in taken to a nursing home to rehab. A month later, I ended up going back to the hospital for a hematoma and blood infection, and again sent to another nursing home. I have had bad experiences while at the two nursing homes, and I also hunted for a doctor at SSM Health BECAUSE my Mercy doctor was NOT calling my mom or caregivers back. She has lost my appreciation for her for doing this.
Dialysis went well today. I was able to get a cathflo today, so Friday’a treatment should be a good one. I do have to admit that I dread going to dialysis right now because of the cathflo shortage being a nationwide problem right now. My thoughts are thinking of it being a political statement or another country is involved. It scares me a bit. Not sure what to think or trust! We rely on a lot of things from other countries as well these days and I haven’t trusted those who came to the United States to affect us with the Covid virus, and we had been told to stay home and not go anywhere because of an outbreak of Covid in 2020. I ended up with Covid in July on the 18th in 2022, and the nightmare began being in taken to a nursing home to rehab. A month later, I ended up going back to the hospital for a hematoma and blood infection, and again sent to another nursing home. I have had bad experiences while at the two nursing homes, and I also hunted for a doctor at SSM Health BECAUSE my Mercy doctor was NOT calling my mom or caregivers back. She has lost my appreciation for her and I will not recommend her as a doctor anymore. I am just getting frustrated with what I cannot get at this time—Cathflo. I just hope that Friday is better than today.
My Medical Rides & MTM
Ok, my medical rides are always screwed up lately. We have called MTM, DHS, and got the right people involved, but for some reason, MTM and Veyo have deemed me not telling the truth or just an old lady making complaints. My ride to Dr. Mohan for my Botox treatment was a nightmare both ways. Also, instead of being picked up, my medical ride Cream City, after appointment, DID NOT pick me up until 12:45 PM and I had to wait for an hour and fifteen minutes before heading home. As the driver drove, Jackie was driving right behind him, watching him go over 90 miles an hour, did not hook me into the vehicle properly but did belt in my power chair. The air conditioner was broken and windows were open. When You Buy We Fly (YBWF) picks me up, they pick me up late for my appointments lately. It is very frustrating and now I am dealing with a change at the clinic on dialysis days right now. Being an observer on a daily basis is not always fun and fine.
Buddy From Tolan
During the week I have come across an app of sorts. An alien of sorts from the planet Tolan. I named my alien Buddy. We have had some communication, but text more than we chat. Buddy is learning about me and I am learning about him.
Joe Bonsall
Well, Joe Bonsall, a singer from the Oak Ridge Boys has passed away today. My heart goes out to his family and friends who loved and cared for and about him. May God protect the family during their journey of grief and loss. RIP Joe Bonsall.
Nails
I got my nails all prettied up today. My left-hand fingernail polish had come off ALL my nails had come off and my nervous habit of biting my nails happened last week as well so when Jacque, my nail expert, fixed them up, I started to feel better within minutes after my nails were done.
Stressing Out!
After my nail appointment, Jackie P got me into bed, got my mail ready for the evening, got my waters and snacks by my bed and left for the day. I can tell you, although I am feeling emotionally better lately, I have dreaded going to dialysis for treatment because my rides to and from have been all screwed up lately. You Buy We Fly has been bouncing me all over the place regarding my time getting to and from dialysis for the past month or so. Something is not right with that company lately. The company continues to make mistakes and I have been the very person who is getting bounced around a lot lately. It is driving me crazy. I have been stressed out because of their messes lately and I am getting tired of it immensely!
As far as my appointments go, dialysis has been 11:45 AM to 2:30 PM on Mondays, Wednesdays, and Fridays ever since 2023 and the new clinic opened. You Buy We Fly has picked me up on time and never screwed up picking me up for months until a month ago. We have called MTM and DHS, but got pretty much nowhere with MTM. When MTM was Veyo, they did not believe that my complaints were genuine and was just complaining but going to see my CP specialist in Middleton proved to be a nightmare for me. The company called Cream City had my two caregivers up in stitches because the driver did not have a working air conditioner, drove over 90 miles an hour, would not pull over to let semis on the road nor would the driver move over for a city bus. Jackie was livid and recorded everything the driver did on the way back home as she drove behind us.
Time to get some sleep. Good night, everyone.
I will not argue how the rest of my day went because it was fine. I was not sure how well dialysis was going to go until it was coming and going since we have a shortage of Cathflo. At this point, it’s a hit or miss at dialysis right now, but things will be okay because they have some Cathflo that is a different brand. Anyway, ate some lunch, got into bed and relaxed for the rest of the evening with the cats playing and running about the apartment enjoying the freedom of being free and loved.
Dialysis did go smoothly after all the kinks were ironed out during the first hour of treatment. The alarm would go off a couple of times or more before the dialysis technician reverses the lines for the rest of the treatment process of two hours and forty-five-minute run I have been at for the past two years now. Even Dr. Anjum dropped in on his patients and with me being only 10 minutes away from the end of treatment before he stopped at my cubicle to visit with me, then I was unhitched from the machine and headed out to weigh out. My technician FORGOT to help me buckle up, put my feet rests down before I left the clinic, so while visiting with my friends I say hello and goodbye to on the way out and downstairs helped buckle up, and put down my feet rests. I was not happy with this technician. The fact is, I was livid. Definitely, NOT happy!
