Do Not Get Me Started

Do Not Get Me Started

My medical ride is having difficulty closing the back door for some reason because the door has something stuck here the door will not shut properly! Oh my goodness gracious, we are having issues this week with You Buy We Fly. What the heck! It is not the driver’s fault that the back door won’t latch shut properly, so I kept to myself and allowed the driver to do what he needed to do. It was not his fault that the vehicle that is new to him isn’t working properly. I just watched and listened, and while he had a neighbor’s dad in the parking lot waiting for his daughter, my driver got the door to latch shut and had me to dialysis safely.

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Waiting For My Ride This Morning & Politics Drive Me Crazy

 Waiting For My Ride This Morning & Politics Drive Me Crazy

Lately, waiting for my ride has been driving me crazy lately. I do not know what to say or do anymore because I believe this medical ride company is playing games with me now. Sometimes they pick me up later than usual or earlier than normal. MTM is the company I have to call to schedule rides for medical appointments and I find this ridiculous and stupid. It is just another ploy of government officials taking control. What is happening to our freedoms? We are lost our freedoms one by one as the United States political system gets worse. But what does my opinion count? I am only ☝️ person who can make a difference. Anyone will lie to get into office. President Biden says do with another gentleman at his side on tv every other commercial break. It is ridiculous, people.

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June 18–Up Late

Up Late

Playing catch up on my journal once again after 11 PM. I have dialysis tomorrow from 11:45 AM to 2:30 PM once again. It will be my second treatment of the week. Wednesday is hump day, lol. I chuckle as I remember the commercials on television with a camel walking down an aisle of workers asking what today is? Yep, Wednesday has been deemed ‘hump day’ for a while now. Miss those commercials these days while at this time I do not care what people think anymore. Get it now? I think I do. Catching up is not always easy for me.

Well?, Good Night Peeps…

Time for me to go. Good night, peeps, as tomorrow brings a new day in a few hours. Phone is on the charger and my watch is charging. Good night!

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June 17–Dialysis Update Day I

Dialysis Update Day I

Today’s appointment begins the first one of the week. Wednesday is my next appointment and I rarely miss my appointments for dialysis. Ir is a rare occasion I miss dialysis day. If I do, it is because my caregivers cannot make it because of bad weather or illness. I rarely miss an appointment even if I have to go to Radiology for a check up on my catheter giving me some trouble and needs to be replaced. I am on my eighth catheter since April 25, 2019, and this one is doing fine at this time. The catheter likes to be used in reverse over being on straight this time around and I am okay with it. However, today, there was a leak of blood on the machine because of a bad syringe holding heparin that keeps my blood flowing without clotting during dialysis. My blood clots well and sometimes the blood gets darker when there is a clot nearby. In order to break up the clot, a dose of Cathflo is needed during treatment. Today, the machine alarmed a few times because my catheter was dealing with something Jaime, the dialysis director flushed my catheter with saline solution and hooked me back up reversed and the machine stopped alarming every few minutes. I did not need Cathflo until after treatment. Dr. Anjum has an order of Cathflo after every treatment each Monday, Wednesday, and Friday.

Now that I am home from dialysis, I can say that treatment wiped me out for the night and I got as far as my lift chair in my bedroom tonight. Sometimes dialysis makes me feel a little weaker and it is not easy for me to situate myself in bed. I am sleeping in my lift chair tonight, peeps. Time to shut shop for the night. It’s early tonight.

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I Guess

Deb is running a bit late. I don’t like it but she has had to get her son to church to get to his ride to Minnesota as he is going on a church trip with others. Her son Tyler is 17 and just finished his junior year in high school at Craig Senior High School. My high school. She is here giving Magic Kitty and she will be washing my hair and giving me a bath, get me to the bathroom, and dressed for the day.

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Now

I am all caught up and now waiting for Deb to arrive to work. I have dialysis today at 11:45 AM to 2:30 PM but lately I have been put on a few minutes early and and out early either waiting for my ride or driving my power chair home by myself and my caregivers meet me at the apartment building lobby. I am awake and got my sleep last night. Yippee and yahoo. I got my sleep this weekend. It does pay to have the TV turned off or not on at the wee hours of the morning after 10 PM. Thank goodness for Fire TV apps from time to time. Now works, too. Hehehe!!!

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Getting Caught Up?!

It seems that once I am all caught up in my journal, I fall a day behind once again. It is a never-ending story of my life these days I guess. Yep, I am one day behind AGAIN! It never ends. Sorry, peeps. I am never busy enough anymore. My weekends are full of relaxation sessions and watching TV and reading when I am not in a sleepy state. Speaking of reading, I finished my James Patterson book Blindside and IT WAS GOOD! The book can go back to the library on time which is June 18th. I believe it is tomorrow already and my weekend is almost over anyway. Tomorrow begins a new dialysis week at the clinic. I wonder who is not going to be there during the week. I know Orville misses a day once a week most of the time. If I was a doctor or nurse, I would make sure my patients DO NOT miss a treatment because as time goes on, missing a treatment once a week will catch up with the patient sooner than later in the future and dialysis may not work well for them. The toxins and unclean blood will hurt the patient in the long run sooner or later. I rarely miss a dialysis day. If my caregivers are running late or can’t make it my place during dialysis day hours, then I miss a treatment. Usually the day is missed and I am at my appointed chair for the two hours and forty-five minute treatment. It does not take long for the techs and nurses to hook me up to my machine at the clinic and it gets me out of the apartment for the morning hours of my day every other day except the weekends are MINE! Woo hoo, but my weekend is about over. Hope I see Dr. Anjum tomorrow during his clinic rounds. See, I do not get caught up but only a few minutes I guess, lol.

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June 17–Waiting

Waiting

The weather is not horrible out as far as heat is concerned this morning at 10:45 AM. I am waiting for my medical ride to dialysis outside. The weather is is going to be 90 degrees today! WOW, it is going to be HOT today. I will not drive my power chair home today because of the heat being 90 degrees this afternoon at 2:30 PM. Why not get a ride in an air-conditioned van You Buy We Fly. Be safe than sorry in this heat at 85 degrees now.

This morning, I had a fried egg sandwich with cheese, Famous Dave’s dill pickles—spicy and tasty, a turkey sausage patty, and ice cubes to suck on. I love my ice cubes, too. ❤️😊

As I sit here to wait for You Buy We Fly medical ride, I am enjoying my journaling at this time. My neighbor Paul has come out to have his cigarette in the designated area for smokers. Gross and smelling of cigarette smoke is bad for me as I cannot tolerate cigarette smoke anymore as I tolerated it as a child and teenager until I’d 17 years old when my grandparents Myra and Clarence Fox smoked most of their lives and quit in the late 80s at my age of 18. Their house walls needed to be repainted after years of smoking in the house. It was disgusting and my kidney transplant helped stop their smoking! Yes!

Ride is here and it is Anthony picking me up! Woo hoo…right at 11:03 AM

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June 15–Dad Wrote A Thank You Text & Life Goes On

Dad Wrote A Thank You Text

My dad got his Father’s Day/I am sorry card and his coaster gift. Both coasters are for Dad and Sandy both, and he sent me a text thanking me for the gift and card. Instead of using the coasters, Dad and Sandy are putting them to be looked at. Whatever works. I have coasters I use for decoration only as well MOST of the time, too. Works for me. Jackie chuckled about displaying them and not using them, too. I just shook my head in a way and chuckled myself, too. Whatever works for my parents will satisfy my appreciation of using them. Why not? They are nice coasters and seeing them at the flea market got my attention for my now former AR (Arkansas) parents now Milwaukee, Wisconsin parents.

Life Goes On

Just like the TV show titled Life Goes On starring Patti Lapone, Kellie Martin, Chris Burke, and Chad Lowe.

Nothing more has been said or done at this time. I am still looking at writing something for my dad to understand me better. Yeah, he does NOT understand me very well and I am going to be 54 on July 3, 2024. I am looking forward to turning a year older in less than a month from today with no idea what is going to happen other than dialysis on Wednesday at 11:45 AM to 2:30 PM, and the idea of moving IS coming soon—I hope?! Leaving here will give me a new lease on life and away from a place that should be condemned! Understand now? Please do read other days I have been writing for the past two years now. I hate this place now!

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June 14–Dialysis Update II and Bus Frustration With You Buy We Fly Medical Rides

Dialysis Update II

Dialysis went just fine and now I am looking forward to a nice weekend at home shortly. Dialysis went smoothly although have to 2.0 kilos of fluid reached only 1985 of 2000 today. Close enough to my weight goal but a little frustrated with it all. I am a little discouraged about the weight and so is Jackie a little bit.  Ugh!

Ride Frustration with You Buy We Fly Medical Rides

Ok, I am getting very frustrated with You Buy We Fly bouncing my times for appointments around every week to every other day or so. Calling them every morning to find out who is picking me up as I know the drivers by name and face now. I love Uncle Norris, Donald, and Demetrius and Demetrius is the owner of the business by the You Buy We Fly, and John and one more driver.  When I got home from dialysis, Jackie and I talked to Julie Dixon regarding our frustrations with YBWF bouncing my ride times ariunf vv Dialysis went just fine and now I am looking forward to a nice weekend at home shortly. Dialysis went smoothly although have to 2.0 kilos of fluid reached only 1985 of 2000 today. Close enough to my weight goal but a little frustrated with it all. I am a little discouraged about the weight and so is Jackie a little bit.  Ugh! I have to wait until Julie D call back next time. Anyway, Uncle Norris was out there when I get downstairs. Got home and had to wait for Jackie for a couple of minutes before heading upstairs to home to be with my babies Magic and Millie this weekend. Yep no dialysis is going to happen until Monday morning at 11:45 AM.

Dialysis went just fine and now I am looking forward to a nice weekend at home shortly. Dialysis went smoothly although have to 2.0 kilos of fluid reached only 1985 of 2000 today. Close enough to my weight goal but a little frustrated with it all. I am a little discouraged about the weight and so is Jackie a little bit.  Ugh! Julie D, and I know for a fact that they are getting annoyed and frustrated with me on a daily basis. I really do not want YBWF to be my medical ride anymore to be honest with you

 today. I am getting frustrated with them. I have gotten to the point where I am finding the dispatchers annoying lately, too. LOL…I hope we can rid get rid of our frustrations soon! That will be great to be honest.

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