Dialysis went just fine and now I am looking forward to a nice weekend at home shortly. Dialysis went smoothly although have to 2.0 kilos of fluid reached only 1985 of 2000 today. Close enough to my weight goal but a little frustrated with it all. I am a little discouraged about the weight and so is Jackie a little bit. Ugh!
Dialysis Update
I have only a few minutes left to dialyze and get some blood back. I am hoping my ride will be here shortly or when I get out for the weekend. Yippee, dialysis is almost over! I have 4 minutes left to dialyze
Counseling
I am finding counseling very helpful at Mercy Options. I like going there even though my ride situation was was all screwed up today! With counseling being top priority on appointment days now. My counselor gets into the nit and grit of my depression and anxiety now. I really like Deb J. She’s pretty cool and I believe she is a Godsend kind of gal. She knows her job. At Crossroads, I found it not helpful so when the counselor canceled my appointment, I decided to never go back there and tell others they should go there. When my appointment was canceled, it was canceled without explanation and I found that suspicious because he said he was going to help me, but I was there three times at that point. It actually pissed me off and I no longer recommend going Theda anymore. Jackie’s opinion didn’t matter to me, but I do have to say her opinion did piss me off as well. If Deb says one thing wrong in my sessions and Jackie is with me because I want her there, her opinion of the place will be negative as well. I need help with my problems people, and I need to feel safe. I was NOT safe at Crossroads for damn sure.
Father’s Day is Coming
I am very serious about my apology to my dad now so Jackie got a Father’s Day card and wrote a sorry note in it and it with my coasters I bought for Dad and Sandy, and today I got text from dad thanking me for the coasters and card. He likes the coasters and instead of using them, he and Sandy have displayed them for show instead. Silly dad, lol. I guess I got something they appreciate.
Now remember, my dad was not going to talk to me until I apologized to him for saying something he did not like. Today’s text was a month with of no communication. I only texted on Sandy’s and Lon’s birthdays on May 21st and 22nd to wish them happy birthday, and Sandy said thank you. No more texts after that until today. His silence was not very comfortable to me at all either. It made it more difficult for me to trust him fully and the memories of him being this way frightened me. I was actually really afraid and upset with him for not wanting to talk to me until I apologized and that really hurt me so much. Trust with him has been knocked down quite are notched recently. He will continue to hurt me by bringing up the past and last time he mentioned that Mom did not want custody of Greg and I anymore had hit me so hard that I looked at my babies that same night and said I am not going to abandon them like I felt abandoned by my mom since I was 12 years old. No fucking wonder I am depressed at times and I fight tooth and nail for my babies although they have been cats from 1990 on to this very day. No wonder I do not take kindly to using my Magic as a pawn when I was in nursing homes in 2022. Now I have Magic and Millie and I love them both even though Millie is not liking to be touched or petted. She is my scaredy cat now. I still love her though. She keeps Magic occupied with play while I’m gone to dialysis or other important appointments out of the building.
Recertification Time
Other than my counseling appointment at 2 PM to 3 PM, if was time for recertification here at Garden Court. I have no idea as to why it is done so early in the springtime and not done in September baffles me because while at Burbank Plaza Kathie R did it one to two months before the month I moved in and I moved in there in March 1992 I believe. I lived at Burbank Plaza/Teamster Manor for several years. I moved from 308 to 110 while living there. Moving to Garden Court at the time in 2020 was the happiest time of my entire life as I had a new lease on life and my illnesses that hospitalized me in 2022 twice broke my happiness and caused my living at Garden Court an unhappy life. I have been living in a building that has a lot of problems. The property management that runs this place is driving this place downward. This place is becoming a horrible place to live. Now I have an application to Riverview Heights and waiting to move in there. I hope, anyway!
Dialysis Update for Today
Well, dialysis went smoothly today, but my blood pressure went low and I had to finish cleaning only until I left for the day. I have been noticing a continuous tread with You Buy We Fly lately. I do not get picked up when I should as if they are playing with my pick up times before and after dialysis lately. It irritates me and Jackie all the time as if the dispatchers do not know what they are doing! Since Jack had left, Henry and Monica have made a lot of mistakes in the past two months it is annoying and why does MTM put up with that shit and every time I make a complaint, it is not resolved and that I am to blame and need to be more patient or I will not have no more medical rides taking me. That is horrible business practice, people! Those annoys Jackie so much and it STRESSES ME OUT, people! What the hell can I do if I am not heard properly. I talk until I am blue in the face and called a liar! I speak the damn truth and you don’t want me to get angry and swear every other word with my temper of a Karnopp man in the family. All the Karnopp men have tempers in my family! Me, too for goodness sakes! I’ve had the Karnopp temper for the past two years when changed two years ago, people! My temper can get loud and unruly now. I have changed in the two years my caregiver Jackie has been helping me. It scares me because my dad’s temper is loud and unruly at times, too! Yes, my dad scares me at times and his bringing up the crap I did as a child and teenager hurts me and puts me in a hateful mood for a while. Anyway, my ride was on time today, and I got home to Jackie waiting for me in the lobby when I got in. Yay, I did not have to wait for her.
Jackie and I will be talking to someone at MTM Friday afternoon when I get home from dialysis because Thursday’s medical ride was screwed up, to her, BIG TIME! While waiting for my ride home today both ways did not make Jackie happy at all. I think we need to talk to Julie Dixon who will look into our concerns and complaints thoroughly with You Buy We Fly. I have had ENOUGH!
Outing Today
Woo hoo, Jackie and I took the Milton Avenue city bus to Wildwood Theater 16 today to watch the movie Summer Camp and Deb met us there when the movie was about to begin. We had popcorn. Now the theater has pizza, hamburgers, fries, and mozzarella sticks. We ordered a pizza slice, hamburger with ketchup and mustard, and mozzarella sticks with marinara sauce. She had the pizza and I had the hamburger and mozzarella sticks and a small bag of popcorn. Jackie had to pay $6 for the small bag of popcorn because the manager gave her a small plastic glass to put popcorn in and I CANNOT HANG ONTO A PLASTIC GLASS OF POPCORN, people! What was she THINKING?!! What the hell? Jackie was NOT HAPPY and had to buy a small bag to hold my popcorn. She was not happy with the food, either! The pizza was burnt and the mozzarella sticks did not look cooked long enough. They were warm and tasty, but I will not order them again next time. My hamburger 🍔 was okay and heated enough. I will stick to the $12 special of a large popcorn, a pop, and some kind of candy. The movie theater workers need more training on heating up the pizza slices, hamburger patties, fries, and mozzarella sticks before I buy warmed food at the theater again. The food idea is new to our movie theater this year of 2024 anyway. Maybe the food idea will not last very long. Will have to wait and see.
After Summer Camp, Jackie, Deb and I left the theater. Since Deb drove to the theater, she drove back home after running some errands and Jackie and I got on the Milton Avenue city bus by Home Depot to the bus station and got transfers for thr West Court city bus, and got off in front of the building. So unlike the last to the movies, it only sprinkled for a few minutes while we headed to the bus stop by Home Depot. We had a downpour the last time, lol. My power chair joystick was covered and did not get wet. The sprinkles were not too bad this time, either. I covered the joystick control with my mask until we got on the bus.
Bus Experience
Well, when it comes to riding the bus, I DO NOT like riding it during the school year when the kids are being picked up and taken to the bus station or sing the bell to be let off near their home. Why? It is because teenage kids in middle and high school can be unruly, loud, anc make a mess for the drivers to clean up later when the day ends. When we went to see IF three weeks earlier, the kids were throwing pop tarts, hitting one another, and saying bad words. Oh my goodness, the generations today are not very respectful these days. It is very sad to be very honest with you. That day we waited for every kid to get off before the driver got me unhooked from my spot on the bus to get to the transferred bus West Court. This time getting on the bus without middle and high school students was excellent since now school is out for the summer—WOO HOO! Today, however, missing the bus in front of the building so we walked and drove my power chair to the bus depot to wait to get on Milton Avenue city bus the theater.
Now, to be very honest with you, I am okay riding the buses while in my power chair but my bott does NOT like the bumps very well, lol. My bottom feels EVERY bump the bus hits. The shocks on the bus may take a beating, but does my bottom for goodness sakes, lol! Unfortunately I have to put up with the bumps and sit in my power chair during the ride and endure the bumpy ride until I get off the bus and get moving. I dislike bumpy moments while driving my power chair about town. Yet, I still enjoy the freedom of getting from place to place using my power chair.
I had a rough night last night. When Jackie came over at 9:30 AM, she helped me get cleaned up. I ended up having a lot of diarrhea all over my back bottom, underwear and shorts. Chunks of bowel were everywhere. Jackie got me cleaned up the best she could and when Deb got to my place in the afternoon, and she helped me by giving me a bath to clean me up some more and get me into bed for the night. I must have gotten hit with a bug, or the heat got to me a bit. I must have gotten a bug of sorts because my stomach did not feel right for a couple of days and by Friday, I was starting to feel a little better in hopes the weekend I will be totally recovered from whatever I may have had. I probably had a bug of some sort because some type of flu bug is flying about. I will be back to myself by next week no doubt. If not, I will go get checked out at SSM Health.
The Rest of the Day
With bed looming close at hand now, I am going to say that my day was not toooooooo bad after all. Jackie stayed a little longer than her normal Sunday work day. I relaxed in bed watching The Spiderwick Chronicles. I have to watch it again to the end another time. It was an a-ok sort of movie with witches, wizards and other magical creatures like Harry Potter. I like movies and tv programs like that. Knowing that there is real magic and darkness out there in the world, but TV movies that are fiction are fake. Entertainment goes a long way these days. Anyway, I am more a mystery kind of a girl than anything. Every once in a while, I watch a scary or horror flick. I think you get it.
Kurtis
A cousin of mine on my mom’s side of the family has brain cancer. Although hard to fathom this disease no matter what type of cancer, but now my favorite cousin Kurtis has cancer now.
What is Going to Happen Today continued
Ok, Jackie left a few moments ago, so now, the rest of today’s Sunday is all mine alone. Magic kitty has settled on the bed next to me on the right side of the bed. Millie is sleeping on the tree in her favorite spot by the window of the bedroom. I am working on my diary/blog once more this afternoon. I have gone to the bathroom having a good, healthy bowel movement that was waiting patiently to be released until the last couple of minutes because I could hang onto anymore, lol. I know it is gross, people! Lol. I finally could wait another minute.
Bowel Movements Time, lol
Lunch of turkey pepperoni and cheese pizza in me for lunch today, a few minutes before Jackie left for the day, it was time to get the bathroom for the day. I have a bowel movement once a day and every once in a while, I can have a bowel movement every other day. It depends on what I have or have not eaten during the week. Most mornings I have get to the bathroom, I have an afternoon bowel movement.
Depending on what I have for breakfast, lunch, snacks, and dinner, depends on the bowel movement formations I have. I hate hard bowels because they are hard to push. I hate loose stools because they can be messy to clean up and wiping my bottom clean gets irritated and sore. A couple of weeks ago, or so if I remember correctly, that my bowels were a little looser than I wanted. Yuck, I know, lol.
What is Going to Happen Today?
Time for me to get the ball rolling and start my assignment for my next counseling appointment with Deb J. On June 13, 2024. Tomorrow I will pay my monthly bills and today my rent check will be signed and handed in to the manager’s office mailbox in the front entrance entryway. Jackie is getting my meds and waters ready for the day. One of my bottles, the pink one with flowers, has Bai water and it something with cherry flavor. Sounds delicious. Jackie watches my food and liquid intake very well and closely as possible because of my kidney disease and I being on dialysis three times a week. Continue later.
Dialysis Information Update from FOk, Gang, I am very serious about getting to and from my appointments when it comes to dialysis. I am not like some of the patients who miss a session one day out of the week from time to time. Yes, patients are not young like I am at 53 years of age, but missing a day of treatment is never a good thing. Yes, some patients can get away with it, but the fluid buildup and toxin levels is what the doctors and nurses worry about the most. As long as a patient’s blood is getting cleaned under the set time, there is no problems for the patient. I have been dialyzing since May 7, so 2019, at the clinic and got down to 2 hours and 45 minutes from starting at 5 hours from April 24, 2019, as a patient at Mercy Hospital.
It has been 5 years since I have begun dialysis again after 31 years with my transplanted kidney my mom gave me on March 12, 1988, when I was junior in high school. Now, I will be seeing a team of kidney transplant doctors and coordinators at Froedert Hospital in Milwaukee, Wisconsin.
Ok, I am realizing that time is going by super fast at the moment. Jackie should be here shortly since it is going on 9:08 AM.
